We're Home
We're home, but really tired (and desperately wanting computer and internet time). I'll try to post pictures and recap of the week tomorrow, but for now thought I'd bring you up to date on Rory's appointment with the THIRTY (yes, 30!) dermatologists tonight.
There were 6 families there for consultation with the dermatologists, and Rory was clearly the star. Although to be honest, she was the only baby - the others were old geezers. She was tentatively diagnosed with an eccrine angiomadous hammartoma back in April, but we're scheduled for a biopsy this coming Tuesday to try to determine if this is correct. Our specialist has been doing some research and there are only 85 documented cases in the world, so as you can imagine the interns and residents are kinda geeked out about seeing her leg, and our doctor's resident clearly felt like she was his star patient. It was kind of funny. I can laugh about it because her situation doesn't seem serious.
Anyway, all the doctors examined her and then were meeting this evening to discuss her leg and decide what they think should be done. For now, we're continuing with the biopsy on Tuesday. Many of them mentioned to us specifically that they thought we should go ahead with that. I'm hoping that this will help give us a firm diagnosis and treatment plan. I'm not too worried about it since the spot has clearly not changed since birth (other than growing with her) and it doesn't seem to bother her at all. She did really well with all the doctors examining her. She cried pretty hard for the first couple of doctors, but then must have decided they weren't hurting her after all and calmed down.
I'll hopefully post tomorrow if I can pull myself away from the piles of laundry Brian and Camden brought back from camp.
There were 6 families there for consultation with the dermatologists, and Rory was clearly the star. Although to be honest, she was the only baby - the others were old geezers. She was tentatively diagnosed with an eccrine angiomadous hammartoma back in April, but we're scheduled for a biopsy this coming Tuesday to try to determine if this is correct. Our specialist has been doing some research and there are only 85 documented cases in the world, so as you can imagine the interns and residents are kinda geeked out about seeing her leg, and our doctor's resident clearly felt like she was his star patient. It was kind of funny. I can laugh about it because her situation doesn't seem serious.
Anyway, all the doctors examined her and then were meeting this evening to discuss her leg and decide what they think should be done. For now, we're continuing with the biopsy on Tuesday. Many of them mentioned to us specifically that they thought we should go ahead with that. I'm hoping that this will help give us a firm diagnosis and treatment plan. I'm not too worried about it since the spot has clearly not changed since birth (other than growing with her) and it doesn't seem to bother her at all. She did really well with all the doctors examining her. She cried pretty hard for the first couple of doctors, but then must have decided they weren't hurting her after all and calmed down.
I'll hopefully post tomorrow if I can pull myself away from the piles of laundry Brian and Camden brought back from camp.
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