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Thursday, January 22, 2015

Throwback Thursday - 100th Day 2014 Edition

As I go back through 2014 and catch up on Project Life, I found these pictures sitting on my hard drive never processed or shared. Considering the 100th day of school for this school year is tomorrow, the timing is perfect to share them.

I think Rory is loving her sweet friend to pieces. They are too cute.

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This week has been one of work, homework, and little sleep, but blessedly boring. Tonight Brian and Rory are completing their 2nd grade project for the 100th day of school tomorrow, and we'll probably watch last night's episode of American Idol. I'm kind of loving this season. Loving even more that it's (usually) appropriate for Camden and Rory to watch with us. Camden loves the music aspect of it while Rory is caught up in the glamour that is Jennifer Lopez and the fantasy of going to Hollywood. Bless her glitter-loving heart.

Monday, January 19, 2015

The Weekend Lens

(borrowing that cute title from Ali Edwards)

Our weekend was full of lots of good things: sunshine and basketball (which doesn't happen too often in January), overnight sleepover with Addison, Paddington with the family paid for with a gift card (doesn't that make it even better?), church Sunday morning and then a long Sunday afternoon full of NFL playoff games.

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Kids are obsessed with basketball right now. Rory got a basketball for Christmas, and Aunt Liz (who his her PE teacher) is teaching them basic skills this semester.
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Sharing gummy bears and few rare peaceful, but happy moments together.
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 Already scrapped! Credits here.
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Saturday, January 17, 2015

2/52: Storytelling

Miss Rory has always struggled with math. Sometimes I think it's all in her head - that she's convinced herself she's bad at math. Other times, I'm not so sure. Calculating money is a pretty big hang-up so we spent some extra time working on it this week, and I grabbed the camera for one quick shot while they were practicing.
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Thursday, January 15, 2015

Fend For Yourself

The kids had a "snow day" (a.k.a. it was cold outside and everyone else canceled so our school did too) on Thursday last week. Honestly, the day after chemo I'm still hyped on steroids (a.k.a. mean and cranky) and generally feeling pretty gross (my official definition for that chemo feeling in the pit of my stomach) so having the kids at home all day wasn't exactly ideal.

Brian left Camden and Rory with strict instructions to "fend for yourself." We've been letting Camden especially do a little more of this anyway, and I love watching him. I mean, I love the idea of watching him. I mostly just try not to nitpick on all the messes he makes when he fends for himself.

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I know there's a streak of light across his face, but I kind of like it - I'll take all the sunshine I can get on these dreary winter days.
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Wednesday, January 14, 2015

Cancer update

I never quite know how much information to share. Some of it seems so mundane, but since I continue to receive emails and texts asking, I will continue to share here. So, just a few highlights:

1. My CA125 went up 11 points to 55 after 1 month on Doxil. Not necessarily encouraging, but I've had many patients and two oncologists tell me this is typical for Doxil and that it is not necessarily an indication that Doxil isn't working.

2. My rash reappeared yesterday morning and by afternoon had spread so I took a steroid. Have I mentioned how much I hate them? They make me feel so sick, seriously almost worse than this particular chemo drug. Good news is that by this morning the rash is about 99% gone so the steroid is effective, and I just might put off taking anymore and see what happens. Shhhh, don't tell my doctor or Becky or my doctor brother-in-law. :)

3. Our second opinion with Dr. M last week went very well. He gave us a lot of information, but was also personable (the personable part is what's lacking with Dr. C). Brian is firmly in the camp of let's go ahead and make the change. I have to say that Vanderbilt seems to be working overtime to please us in the last couple of weeks, and I have no complaints about Vanderbilt so making the decision to change is tougher than it might seem. We've decided to finish 3 rounds of Doxil and then see what the scan says because a change in regimen might be necessary at that point and it seems logical to change doctors at that point rather than right in the middle of a set chemo schedule.

4. My platelets continue to land in the normal range, which is a blessing for two reasons. First, it means that my immune system is not too compromised. Second, I don't need to worry about having the Neulasta shot (which would complicate matters since actual narcotics are necessary to control the pain caused by that shot) and it means I don't have to postpone treatment. My white blood count has been significantly higher than normal, but fell this week to closer to normal.

5. My port is having issues. This could mean I'll have to have it removed and a new one installed, which means surgery. About a week and a half ago I had two newbies spend about 20 minutes accessing it, and they had trouble flushing it and getting blood return. I chalked it up to the fact that they were new. But last week the chemo nurse also had to spend some time making it work and yesterday when I went in for lab work, they had to call in a second nurse to make it work. It's going to be a wait and see situation. I think my doctors/nurses will be willing to work with a finicky port as long as it is functioning, but working with a finicky port is just a tad uncomfortable. A port need/clamp is quite thick and probing around doesn't feel great. 

Okay, that's about it. See? Kinda boring.

In other news, I actually started Project Life 2015. Trying to keep it simple and stay current (because I pretty much have a solid 4-5 months missing from 2014).

Week 1
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Week 2, left side
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Week 2, right side
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